Data Governance & Ethics
Responsible data management and ethical practices within ARCHIMEDES
Leadership Committee
Dr. Katey Rayner
Chair
Kristina Orvhall
Deputy Chair
Dr. Kelly Cobey
Dr. Jodi Edwards
Dr. Julie St. Pierre
Jennifer Gunning
Dr. Alan Evans
Dr. Jason Karamchandani
Data Governance
ARCHIMEDES Data Governance Framework Overview
The ARCHIMEDES Ethics and Data Governance Framework describes the tools and practices that enable the responsible contribution and dissemination of health data through ARCHIMEDES. A summary of the Data Governance Framework can be accessed below, if you’re interested in accessing the full document, please email [email protected].
Data Sharing Consent Templates
These templates were created by the Metaresearch and Open Science Program at the University of Ottawa Heart Institute and adapted from the Ottawa Health Science Network-Research Ethics Board templates.
These templates are being provided to the research community as a resource that can be adapted by the research team and their institutions study goals and privacy considerations. These documents have been reviewed and revised through many processes including input from legal and bioethical perspectives from different jurisdictions in Canada, privacy and security professionals, and patients and caregivers in Canada.
Last updated: 2025-11-10
Please view the data sharing consent templates for use in four different scenarios for clinical study data to be shared.
Consent is critical to clarify factors of what a participant may expect for how their data will be collected, handled, stored, and/or shared to be used in the future.
Here, we present template resources for consent for REBs for data sharing, illustrating the continuum of consent language for controlled access to open data sharing, as well as obtaining consent retrospectively.
Download the templates below:
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